Thursday, August 4, 2011

Health Update: Fibromyalgia

As a general update as to my health to my loved ones and friends:

Recently, I have been very ill. As most of you know, I have fibromyalgia. Since it is not a wide-known condition, if you are not familiar with it, please see the articles and information sources listed at the bottom of the post. This will help reduce questions you may have and allow you to have a better frame of reference for what I am going through.

My fibro has been flaring up increasingly frequency and intensity over the last few months to a point where it's been pretty crippling. I'm having difficulty keeping food down, the pain I feel is pervasive throughout my body, I have chronic fatigue and insomnia, among a myriad of other symptoms.

This has been very difficult for me ~ especially this informing those who love and care about me about what I've been going through. My Amandazonian SuperWoman fashion of tanking my way through it has led me to downplay talking about it as much as I should have. I know I'm ill, but I don't want my illness to define me
Rest assured I am taking multiple steps to get well.

I have lost over 40 lbs, I've changed my diet, exercise regularly - even if it's just a walk on bad days. I saw my doctor on Friday and we discussed treatment options. I've gotten some relief from the pain, inflammation, and insomnia through a combination of new medication and vitamins/herbs/stretching exercises. I also discovered I was having a negative reaction to one of my medications, and saw a specialist in regards to that. I know have a team of specialists who are assisting me with various courses of treatment during this time period.
I feel very confident that the various lifestyle and medicinal treatments will have a positive effect, and that I will recover from the severity of the flare up I'm struggling with right now. With the treatment options and adjustments I'm making I expect to have a better understanding of how treatment is progressing in 2-3 weeks with hopefully a marked improvement by 6 weeks.

Due to all this, I've been absent at work fairly frequently, which has led my employer to request I take time off to get better. At this point, I am unable to work. So I am in contact with them to discuss what will happen going forward.

In this same vein, I may have also not responded to texts and/or requests to go out, or seemed a bit off or odd. Please understand if this has happened, it reflects not on you or our relationship, but rather my health.  And if I am able to do some things some days, those are turning more into my good days recently.

I don't wish to alarm any of you - simply inform you about what is going on with me, and let you know I am very thankful for the support structure I have - the people I'm fortunate to know and be friends with. The small reminders that I am cared for and loved really do bring a smile to my face, and that is the best way people contribute to helping me feel better. 

Thank you all so much,

Amanda


This is a good article helping those who don't have fibromyalgia understand the illness: http://chronicfatigue.about.com/od/whatisfibromyalgia/a/understandfibro.htm

Fibromyalgia - Wikipedia - http://en.wikipedia.org/wiki/Fibromyalgia

Fibromyalgia - MayoClinic - http://www.mayoclinic.com/health/fibromyalgia/DS00079

3 comments:

  1. Thank you for your email, sweetheart. Keep your chin up, remember you've got so many people rooting for you, and let me know if I can do anything to help you out. I'll be trying to give you a call today, actually, about something I know we can do to help. I'll catch you later.

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  2. Will keep sending you good thoughts and mental hugs

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  3. Nice information! I'm really enjoying reading your blog here, and I'm looking forward to more!

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